The Parkinsons.Community Site is intended for use in the United States. Any use outside the United States is at the risk of the user. You may not use the Parkinsons.Community Site in violation of any export laws or data transfer laws.
THE PARKINSONS.COMMUNITY SITE IS NOT INTENDED TO PROVIDE MEDICAL ADVICE. DISCUSSION OF MEDICAL AND HEALTH TOPICS ON THE PARKINSONS.COMMUNITY SITE IS PROVIDED FOR INFORMATIONAL PURPOSES ONLY AND SHOULD NEVER BE CONSTRUED AS, OR USED AS A SUBSTITUTE FOR, MEDICAL ADVICE, DIAGNOSIS OR TREATMENT. YOU SHOULD ALWAYS TALK TO YOUR HEALTH CARE PROVIDER REGARDING YOUR SPECIFIC MEDICAL NEEDS AND FOR ANY DIAGNOSIS OR TREATMENT.
FORMS ON THE PARKINSONS.COMMUNITY SITE ARE NOT DESIGNED TO ADDRESS MEDICAL EMERGENCIES. IF YOU HAVE A MEDICAL EMERGENCY, PLEASE IMMEDIATELY CALL EMERGENCY PERSONNEL (911) TO REQUEST PROMPT MEDICAL ATTENTION.
About the Parkinsons.Community Site
Research Catalyst focuses on matching individuals to clinical research trials seeking solutions to neurological disorders (each a “Study” or “Research Catalyst Studies”).
Research Catalyst also assists manufactures of new medications with providing information to individuals that might benefit from those medications. The information provided might include information related to the disease or condition the medication is intended to treat, and information about the medication itself. Research Catalyst is compensated by the manufacturer of the medication for these services. You can advise us that you are not interested in receiving these marketing messages by opting out at [insert address for opt-out]
The Parkinsons.Community Site provides forms (collectively referred to herein as the “Parkinsons.Community Site Forms”) for prospective Study subjects to communicate with, and provide information securely to, Research Catalyst staff, and to submit information about themselves to Research Catalyst in order for Research Catalyst researchers (“Researchers”) to begin the process of determining if the individuals are eligible to participate in a Study.
Research Intake Questionnaire
Research Catalyst focuses on identifying potential Study participants for clinical research. If you are interested in becoming a Study subject for this type of research, you may complete and submit the “Research Intake Questionnaire” that requests Personal Information about you (“Intake Questionnaire”) on the Parkinsons.Community Site. Research Catalyst will review the Personal Information in your Intake Questionnaire to determine whether we believe there is a research Study currently seeking participants that you may qualify for. Our staff may also contact you either by phone or via email to obtain further Personal Information from you related to your condition. If your medical condition appears to be consistent with Study inclusion criteria, our staff may request that you complete and submit the Medical Records Release and/or submit certain medical records to our office. If, after reviewing your medical records and other Personal Information, our staff believes that you might qualify to participate in a Study, we may forward your medical records and other information to the research institution conducting the Study and/or to a study sponsor. Please note that Research Catalyst is not a healthcare provider and that the use of the Parkinsons.Community Site and submission of information to us through the Site does not create a physician-patient relationship between us.
Medical Records Release Form
We may decide to assist you in obtaining your medical records and ask you to complete and submit a Medical Records Release Form (“Records Release Form”) on the Parkinsons.Community Site. We will submit this form to all of your doctors that you have listed in this Release Form and ask that they send copies of your medical records to us. Alternatively, we may ask that you print the form and send it to your doctors to request that your medical records be sent to us.
Upload Medical Records Form
If you have medical records or other relevant information that you would like to submit to us, you may use the Upload form to securely send information to our office. This permits secure submission of medical records. Please do not send medical records by email, as email may not be secure.
Warning about Email Communications
When you submit Personal Information to us through the Parkinsons.Community Site, you are representing and warranting to us that you are at least 18 years of age, that you are who you say you are and that you have the authority to disclose that Personal Information to us through the Parkinsons.Community Site. If you do not have the authority to do so, you may not submit Personal Information to us through our Parkinsons.Community Site. You release Research Catalyst, our shareholders, directors, officers, employees, and agents from any claims and damages, known and unknown, arising out of or in any way connected with your unauthorized submission of Personal Information to us through the Parkinsons.Community Site.
Personal Information We Collect From You and How We Use and Share It
The Personal Information that you may submit to us in the Parkinsons.Community Site Forms includes your name, date of birth, phone number, gender, email address, medical records, and general health information and information about your underlying neurologic condition or illness. It may also include your doctors’ names and contact information, details about your health insurance and information about your living conditions.
Our Internal Uses
We use your Personal Information to help us to evaluate whether you might qualify to participate in certain research Studies. If you appear to qualify, we may send your Personal Information to the entity conducting the Study. We also may use your Personal Information to contact you to (1) obtain additional information from you that we may need to make such evaluations, or to obtain required written authorizations from you that will be needed for your participation in a Study (2) provide you with information about our office or a Study or (3) answer any questions that you may have.. We also use your Personal Information for general, medical and market research purposes, and to promote new medications that might be suitable for your condition. Your Personal Information may be provided to a third party who is conducting a Study, so that they can contact you about participating in that Study; or provided to third parties that have new medications that might be appropriate for your condition. Information that is protected under the Health Insurance Portability and Accountability Act, as modified, and its implementing regulations (“HIPAA”) is protected in compliance with those requirements. We will not send your protected health information (“PHI”), as that term is defined in HIPAA, to an unrelated third party without your written authorization.
We may also use your Personal Information for our internal office administration, and to obtain payment for our services from Study sponsors or research institutions.
We will store and maintain your Personal Information so that we can review your Personal Information in the future to determine if you are eligible for any future Studies, and to contact you to discuss your interest in participation in any such future Studies. All Personal Information (including medical records) that you send to us, or authorize us to obtain on our behalf, will be stored by Research Catalyst in accordance with applicable law. If you later decide that you no longer want us to store your Personal Information and contact you for these purposes, please contact our Privacy Officer at Privacy@ResearchCat.com
We also use Personal Information as necessary to administer the Parkinsons.Community Site.
Sharing Personal Information
If you submit a Medical Records Release Form at our request, we will share your Personal Information with the doctors and the offices you have listed in the form so that we may obtain your medical records.
If you are eligible for a Study and desire to continue the process to become a Study subject, we may share your Personal Information with an entity conducting the Study.
We share the Personal Information you provide to the Parkinsons.Community Site with those of our third party service providers as necessary for them to provide us services to help us to provide and administer the Parkinsons.Community Site and to increase the Parkinsons.Community Site’s functionality. Our contracts with these service providers obligate them to only use and share Personal Information for these purposes.
We will disclose Personal Information where required to do so by law, including pursuant to subpoena and otherwise if we believe that disclosure is necessary to comply with the law. We will disclose Personal Information upon the request of law enforcement or to protect the security or integrity of the Parkinsons.Community Site if we believe that disclosure is required or authorized by applicable law.
Collection and Use of Non-Personal/Aggregated Information
When you use the Parkinsons.Community Site, we receive and store certain non-identifiable information. Such information, which is collected passively using various technologies, is not used to specifically identify you. We may use this information and pool it with other information to track, for example, the total number of visitors to Parkinsons.Community Site and the domain names of our visitors’ Internet service providers. The following is additional information about this collection and use of technical information.
We may collect information that your browser sends whenever you visit our Parkinsons.Community Site (“Log Data”). This Log Data may include information such as your computer’s Internet Protocol (“IP”) address, the pages of our Parkinsons.Community Site that you visit, the time and date of your visit, the time spent on those pages and other statistics. We use the Log Data for purposes of providing and improving the Parkinsons.Community Site.
You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. The Help feature on most browsers provides information on how to accept cookies, disable cookies or to notify you when receiving a new cookie.
We may use third party products, such as Google Analytics, to assist us with the effectiveness of our advertising campaigns on other third-party websites. When you visit a page that uses one of these products, either on our Parkinsons.Community Site or one of one of the sites on which we have placed our advertisements, various cookies may be sent to your browser. These may be sent from a few different domains. These cookies enable us to use other services in conjunction with trusted 3rd party providers to help us to measure the effectiveness of our advertising efforts and these third party services may send their own cookies to your browser and collect information about your use of our Parkinsons.Community Site.
Google recommends installing the Google Analytics Opt-out Browser Add-on – https://tools.google.com/dlpage/gaoptout – for your web browser if you wish to opt-out. Google Analytics Opt-out Browser Add-on provides visitors with the ability to prevent their data from being collected and used by Google Analytics.
For more information on the privacy practices of Google, please visit the Google Privacy & Terms web page: http://www.google.com/intl/en/policies/privacy/
Pursuant to California Civil Code Section 1798.83, California residents have the right to request from a business any personal information that a business may have shared with a third party for direct marketing purposes. We share Personal Information with pharmaceutical manufacturers for direct marketing purposes related to medications that may be suitable for your condition. We also share Personal Information with entities that are conducting Studies that you may qualify for. We do not otherwise share Personal Information with any third party for direct marketing purposes.
The California Online Privacy Protection Act (CalOPPA) requires us to disclose how we respond to Do Not Track signals set in a user’s browser. The following is information about how we respond to Do Not Track.
- Do Not Track
Internet browsers generally offer a Do Not Track option that relies on technology known as a Do Not Track header that sends a signal to the websites that a user visits to tell the website about that user’s Do Not Track preference. You can usually access your browser’s Do Not Track option in your browser’s preferences. There is currently not an industry standard for Do Not Track technology and we are not able to support Do Not Track preferences. However, if you do not wish to be tracked through Google Analytics, then opt-out by going to the following link: https://tools.google.com/dlpage/gaoptout.
Security of Personal Information
The security of the Personal Information that you provide to us through the Parkinsons.Community Site is important to us, and we implement and maintain reasonable, commercially acceptable security procedures and practices appropriate to the nature of the information we store, in order to protect it from unauthorized access, destruction, use, modification, or disclosure.
The Parkinsons.Community Site is Hyper Text Transfer Protocol Secure (HTTPS). HTTPS is the protocol over which data is sent between your browser and the Parkinsons.Community Site and the “S” stands for ‘Secure’ meaning that all communications between your browser and the Parkinsons.Community Site are encrypted.
We use reasonable efforts to keep the Parkinsons.Community Site and Personal Information safe and secure, but you are still using the Parkinsons.Community Site at your own risk. There is no guarantee that the Parkinsons.Community Site is 100% safe and secure. We are not responsible for the actions, content, information, or data of third parties, and you release us, our directors, officers, employees, and agents from any claims and damages, known and unknown, arising out of or in any way connected with any claim you have against any such third parties.
Prohibited Use of Parkinsons.Community Site
You agree not to submit any information to through the Parkinsons.Community Site that:
- Is defamatory, libelous, abusive, or obscene, including, without limitation, material which encourages conduct that would constitute a criminal offense, give rise to civil liability or otherwise violate any applicable local, state, federal, or international law;
- Infringes on the copyright or any other proprietary right of a third party;
- Would invade the privacy of any other person;
- Contains a virus, worm, trojan horse, time bomb, constitutes ransomware, or contains or constitutes any other harmful program or component; or
- Attempts to gain unauthorized access to other computer systems or networks connected to the Parkinsons.Community Site.
Intellectual Property Ownership
Research Catalyst alone (and its licensors, where applicable) shall own all right, title, and interest, including all related intellectual property rights, in and to the Parkinsons.Community Site, all content therein (including, but not limited to, the Records Release Form and any questionnaires or information-gathering documents), and any suggestions, ideas, enhancement requests, feedback, recommendations, or other information provided by you or any party relating to the Parkinsons.Community Site or any services provided in connection therewith. You may not remove, alter, or obscure any trademark or copyright notice or any other proprietary notice that appears on or in the Parkinsons.Community Site. Research Catalyst’s name, logo, and the product and service brand names associated with the Parkinsons.Community Site are trademarks of Research Catalyst and no right or license is granted to use them. All logos, trademarks, service marks, domain names and trade names appearing on or within the Parkinsons.Community Site (collective “Marks”), whether registered or not, are the sole property of Research Catalyst or their respective owners. You may not use any Marks without the express written permission of Research Catalyst or their owners.
Modifications, Termination, Interruption and Disruptions to the Parkinsons.Community Site
You agree, confirm and acknowledge that we may modify, suspend, disrupt or discontinue the Parkinsons.Community Site whether to all users of the Parkinsons.Community Site or to you specifically, at any time with or without notice to you. You agree and acknowledge that we will not be liable for any of the aforementioned actions or for any losses or damages that are caused by any of the aforementioned actions. We do not guarantee that the Parkinsons.Community Site will be uninterrupted or that it will be secure, consistent, timely or error-free.
We provide the Parkinsons.Community Site for your convenience only. Because of the possibility of human and mechanical error, as well as other factors, WE DISCLAIM ANY EXPRESS OR IMPLIED WARRANTIES OF ANY KIND, INCLUDING WITHOUT LIMITATION THOSE OF MERCHANTABILITY, REPRESENTATION ABOUT ITS ACCURACY, COMPLETENESS, OR APPROPRIATENESS OR FITNESS FOR A PARTICULAR PURPOSE, AND NON-INFRINGEMENT. Please note that some jurisdictions may not allow the exclusion of implied warranties, so some of the above exclusions may not apply to you.
Limitation of Liability
WE WILL NOT BE LIABLE TO YOU OR ANY THIRD PARTY FOR ANY DELAY, DIFFICULTY IN USE, INACCURACY OR INCOMPLETENESS OF INFORMATION, UNAUTHORIZED ACCESS, COMPUTER VIRUSES, MALICIOUS CODE, LOSS OF DATA, COMPATIBILITY ISSUES, OR OTHERWISE. WE WILL NOT BE LIABLE TO YOU OR ANY THIRD PARTY FOR ANY DIRECT, INDIRECT, SPECIAL, INCIDENTAL, CONSEQUENTIAL, EXEMPLARY OR PUNITIVE DAMAGES (INCLUDING LOST PROFITS, LOST DATA. COST TO PROCURE REPLACEMENT SERVICES OR GOODS, OR BUSINESS OPPORTUNITIES) ARISING OUT OF YOUR ACCESS TO OR USE OF OUR PARKINSONS.COMMUNITY SITE, OR ANY ACTS, OMISSIONS, DEFECTS, SECURITY BREACHES, OR DELAYS, REGARDLESS OF THE BASIS OF THE CLAIM OR IF WE HAVE BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGE OR LOSS. If this limitation of liability is not wholly enforceable as drafted, in no event shall damages payable by Research Catalyst or its officers, directors, employees, agents, or owners exceed $5.00 USD.
You agree to defend, indemnify and hold us harmless against any claims, losses, damages, expenses or costs (including without limitation reasonable costs of litigation such as attorneys’ fees and expert fees) arising from, incurred as a result of, or related to your breach of this Agreement, your unauthorized or illegal use of the Parkinsons.Community Site or the information contained within or transmitted through it.
Effective Date: 1 January 2018